It’s been too long since I posted an update on Brave Kate. The last time I posted about our little cancer warrior, she was about to have her tumor removed. The surgery was a great success, as far as surgeries go. There is hard news though. The complete biopsy changed her diagnosis to unfavorable histology. I asked Kate’s mama, Amanda, to write up an update for us. It is so heart-breaking to watch one of my closest friends have to walk this scary road with her baby. Such a helpless feeling engulfs me when I think about it! Maybe you feel the same way? I remind myself that praying is a far cry from helpless. I can pray and attempt to recruit more prayer warriors on Kate’s behalf.
Here is an update and Amanda’s prayer requests. Please continue your prayers for this family… they are needed now more than ever!
***We are one week into our new protocol for Kate. She has started her treatment from the beginning of UH1 because of the chemo resistant cancer cells in her tumor. Even though the surgeons have removed the tumor and her kidney (all 2.5 lbs of it, which covered most of her left side with a 1 inch piece of tumor) she needs to go through this 30 week chemo plan to keep even a cell from reproducing into a more resistant cancer. The surgery was a “clean” surgery with every border cleared of cancer, but there is no way to know if there is a finger shoot of cells somehow clinging to her body. If the cancer did come back or we chose a lesser protocol she would have about a 40% chance of survival. Relapse is very real and much harder to beat in Wilms kids (another angel yesterday). We have to hit it hard now, with her plan she still has an 85% survival rate, just a lot more to go through. We have a lot behind us, but in front us we are facing daily neupogen shots to keep her white blood cells up to help her body fight infection, inpatient stays (5 times we will stay for 5 days and 10 other 1 nights stays), twice a week blood counts (finger pokes), and a much higher risk of neutropenic symptoms (her body reacting to the chemo with fevers to fight off the cancer, but will need to be hospitalized, most parents who have been there have said they end up in the hospital between most treatments).
Having shared all these crazy realities for her, here are the things on my heart I would love prayer for:
– Her anxiety level is much higher now whenever we go to the hospital or when she has shots. She is gritting her little teeth, Please pray for her to have some kind of special grace to get through this challenging time. I am amazed at her recovery, after the shot or procedure she seems fine. She continues to have a beautiful faith that God is with her
– Her next inpatient visit they will be employing the strongest chemotherapy drugs, which cause the most nausea. But she had a bad reaction to the anti nausea drugs last time so they are stripping her plan down to the bare minimum to see if her reaction will be better, but there is a risk she will be much more sick or they will pick the wrong drugs to pull. Pray for least sickness and pain for her.
– Pray for her long term memories to not be haunted by the pain of these challenges (some kids seem to remember nothing, some remember everything). Especially the catheter, I am praying she does not feel violated, but can have some understanding about it. She already has calmed a lot of my fears by sharing she understands she needs to do hard things to get better.
– Pray for her daily shots, it is an ordeal. We are trying to just do it and get it over with, the anxiety is stronger for her then the pain. Lots of tears and hugs for her. Praying she can have some understanding about why we have to do it and some peace. Rob is getting better at it. He is my hero! So grateful for insurance, the shots cost about $1,000 a day.
– Thursdays are the new chemo day, please pray for her on that day, she struggles so much with being accessed in her mediport under her skin.
– Please pray for a good appetite, she has been doing well with eating the last few days (thanks to Connor my nephew) but she is at her lowest weight. They will not put in a feeding tube until she has lost 15% of her body weight since the surgery (which was 33 lbs. she is about 32 lbs. now) So I am really hopeful she will not need one.
– Her energy and patience is a struggle for her, pray for wisdom for us on how to comfort her and keep a few boundaries in place so she feels secure.
– Please pray for our family as a whole, Luke’s separation anxiety, Rob giving the shots and his financial concerns, and my headaches and heart break over my little girl going through more then a 4 year should encounter.
I have to share there continues to be mercy from God lighting the way, he smiles at us through your prayers, mercies that are new every morning. Lots of support and an extended family that has rallied and loved us in more beautiful ways then we could have every hoped for, ever. Thank you for your love!***